Here you can listen to the interview I did to an American girl with Stargardts Disease:
http://lowvisionbureau.podomatic.com/entry/2012-02-04T07_17_34-08_00

Jennifer Bryan is a visually impaired college student from New Jersey now living in Houston where she is studying doing her PH,D in Health Psychology.

She is doing a study about Stargardts Disease, with surveys and
Writings there to tell people stories with Stargardts.

This study may help researchers, ophthalmologists and psychologists when treating or looking for new clues in the development of the disease.

There may be things that doctors and researchers may be overlooking about this eye disease and studies like this can help a lot.

Here you can participate in the study:
https://www.surveymonkey.com/s/PHFTSLL

Hope as always you find this blog post and the interview interesting.
Alvaro.
Founder.
Low Vision Bureau
http://lowvisionbureau.podomatic.com